Woodgate Festival 2019

So last weekend I ticked off another thing on my list- going to a festival! 💃🏻 Now typically festivals involve weekend camping, further a field but being realistic, I couldn’t manage overnight at a festival never mind a weekend! Never the less, it had all the other things festivals are famous for, copious amounts of mud, alcohol, dancing and gross port-a-loo’s!🍻 So on Saturday I headed to Trentham Gardens, Staffordshire for the Woodgate Festival, a night full of glitter, space buns and cheesy 90s pop bands, who wouldn’t love that?! I went with my older sister and her friends and we had such a good time, Five kicked off the festival and I was in my element. I felt 8 years old again, belting out every word and remembering all the dance moves. Followed by other nostalgic pop acts, Lolly, Phats and small, blazin squad, atomic kitten and Bewitched I was obviously loving my life. Although it was chucking it down with rain and freezing cold, it didn’t stop us having fun, but after it finished all I thought is thank god I can go home, get a bath and warm up (getting old!) My festival experience was amazing, I was so happy fangirling over the boybands and my wellies sinking in the mud but it also confirmed for me that I’d be hopeless at a weekend long festival 😂. So that’s another thing ticked off the list! What next?! 🤔

Five feet apart

So last night I went to see Five Feet Apart at the cinema with mum and Gemma, I took a pack of tissues because if it was anything like the book, they were very much needed! So for anyone who cares here’s my thoughts on the film, as it has had some criticism in the press, mainly due to ignorant people who have no experience of CF (aren’t they the lucky ones!). The film was amazing, possibly a little too close to home for me and my family but it was important for me to see it regardless, Will Newman has B Cepacia, an extremely stubborn bacteria that is highly resistant to antibiotics, basically, it’s a twat. I also have the same ‘bug’ which for anyone who has read the book or seen the film will know I also don’t have the option to be considered for new lungs, there is no ‘plan B’ for me, which is why I think the hardest part of the film was when Stella was getting her new lungs, as much as it’s an amazing gift to anyone who has that opportunity, it makes me slightly jealous that I don’t even get a discussion of the possibility of new lungs now and I don’t think that makes me a bad person. The whole film portrays Cf really well in my opinion, we are so lucky to reach our teenage years never mind become young adults, which is why there’s not one person I know with Cf who doesn’t live life to their fullest, we all have the same outlook on life, we know it’s far too short, we watch our closest friends die, we have to watch the torment our families go through whenever we catch a cold or have to have treatments in hospital, we don’t take any of this for granted. If that means we are reckless and impulsive at times, just go with it because as the film says, it’s only life and it’ll be over before we know it. The film is incredible to raise awareness, because considering Cf is becoming more and more common (sadly!) there is still a huge amount of people who have never heard about it. It can only do wonders for the taboo around organ donation, you don’t need them if your not living anymore, but they can help someone live that little bit longer, so make sure your on the register! It also show that love knows of no boundaries, even a bitch like Cf cross contamination cant stop it 😂 So there’s my view on the film and how it affected me, it’s incredibly moving and also powerful but the writing and research to portray Cf realistically, is pretty spot on! Top and bottom of it, giving someone life is the best gift you can give, live life to the absolute fullest, even on the darkest of days and read the book! Or watch the film, but I recommend the book first! 💜 #fivefeetapart #cysticfibrosis #65roses #organdonation

Sky bar in Bangkok

So this is a new addition to the list because I didn’t realise how much I would actually love seeing this place, plus, I’m incredibly lucky to have experienced this, its a truly amazing place that you need to see!

This is probably the most famous rooftop bar in Bangkok due to it being featured in the film, Hangover 2. There are a few others in Bangkok but as we were only going to get to visit one, we thought we may as well visit the most famous and it did not disappoint! The views from the 64th floor were incredible! Very, very windy because of how high we actually were but so worth it. The Sky Bar is based inside a gorgeous hotel called Lebua at State Tower, as soon as we stepped inside we were glad we dressed up to fit in, the staff were so friendly too, although the lift seemed to take FOREVER due to it being on the 64th floor 😂

The staff in the bar are really attentive, they even offer to take numerous photos for you and have a torch to make sure you get the best lighting also, a nice touch I thought! The drinks were pricey, we stayed for 2 cocktails each, cost us £74 but I suppose it’s worth it for the views and memories! I recommend anyone to go visit if you get the chance in Bangkok, dress up and live like celebrities for an hour or two- great night!

 

Walking with elephants

So for anyone who follows me on social media, you will know I have just got back from a memorable 2 weeks in Thailand! By far the craziest, unusual place I have ever traveled to, honestly, it’s another world and I’d definitely recommend going if you get the chance!

We did many things during the trip, a couple which I have added to my bucket list so I can blog about them, but my favourite experience on the holiday was by far spending a day with elephants! We picked to go the Elephant Retirement Park, Phuket as they do amazing work caring for elephants of all ages who have been mistreated most of their life by being forced to ‘perform’ for tourists. It breaks my heart that these animals are separated from their mothers at birth and then trained, chained up and forced to perform ‘tricks’ for audiences and have countless visitors riding on them all day and night.

The retirement park is strongly against this and provides them a safe, caring home in their natural environment. I also had the mindset before I went, why can’t they just free them back into the jungle? This was a naive way of thinking as I learnt as these animals have been kept in a domestic environment, they would no longer survive in the wild as they are used to humans providing food, so, therefore, wouldn’t hunt for themselves and also they seek comfort in human contact as it is what they are used to, wild elephants would just drive them out of their ‘territory’ and possible kill them.

After arriving we were allowed to walk around freely and meet all the elephants, I underestimated just how big these animals are, literally quite intimidating up close as they are HUGE. After a few minutes, you could see they were just gentle giants and the way they seem to interact with us was amazing. They are so intelligent and all have their own personality, it was very surreal just being allowed to touch and be that close to them, much better than any zoo experience!

We then prepared and fed them all food, elephants are VERY hungry, like all of the time so despite how many of us were there they were loving life, eating 100’s of bananas! The second part of the day was my favourite, time to get in the mud spa! WOW, watching the elephants playing in the mud, splashing everyone with muddy water from their trunks, rolling around like puppies were amazing, also quite worrying as an elephant lying down in a giant muddy lake, means I couldn’t see where they were at times, hence why I fell over one of their legs, OUCH! But it was amazing, the mud is extremely good for your skin too- BONUS, free spa treatment 😏 We spent about half an hour in there before going to another pool to scrub and shower them off, hands down the most surreal thing, I think it may have even topped swimming with dolphins in Mexico! 😱

All in all, an unreal day spent with these animals and the work they do at this park is amazing, each elephant has their own carer and the relationships they have built is a real pleasure to see, you can tell the elephants are well cared for and are happy here!

Here’s just a few shots of the day… of course I have many more in my album!

 

 

 

 

Popcorn, dancing and acrobats!

So a few weeks ago after my last blog post, my friend Hannah Wheawall got in touch and wanted to help me tick something off my list. She bought a family ticket for me to take my nieces and nephew to the circus, first of all, the generosity of Hannah actually really moved me that she would do this for me, secondly, it was absolutely amazing and we all loved it! I can’t thank Hannah enough, it may seem like a small gesture but it meant the world to me.

I wasn’t sure what to expect from Gandy’s Circus, other than clowns obviously, I was shocked to see not many clowns, instead, people from all over the world made up this incredible circus and put on memorable shows. The amount of hard work and talent that the performers have amazed me, I have to say the tanned topless acrobats was a real treat for me and my sister! 😂

My nephew Logan and niece Olivia came with me and their mum Gemma, to say they were excited was an understatement, they absolutely loved it, their little faces lighting up with all the music and dancers in sparkly costumes melted my heart!

I highly recommend Gandy’s circus to anyone who hasn’t been, they tour all over England so keep an eye out for their shows! The greatest showman tour I went too was brilliant, so much fun and something we all won’t forget! Check out their website here: http://www.gandeyscircus.com/the-show.html

 

 

 

 

Boudoir photoshoot

I’ve finally ticked off another thing off my list! Last week I went for a boudoir photoshoot at the very talented Bcaptured Photography studio.

This was one of the ones I’ve been dying to do but thought I’d never get round to it, until I took the plunge. I was told I would get my makeup and hair done and to bring two ‘sexy outfits and let them do the rest…

I turned up feeling slightly nauseous at the thought of taking my kit off in front of a stranger but the girls made me feel so comfortable straight away. Georgia glammed me up with plenty of glitter (just how I like it!) And then I was told to get in my outfit No 1 and Beccy would start my shoot. After my first pose and couple of snaps later the nerves went completely and I really enjoyed it. It was fun, Beccy let me have my input on what poses I would be comfortable with and I couldn’t be more pleased with the results! As I had just got engaged a couple of days before (YAY!💍) I asked if I could have some completely naked yet tasteful snaps for my fiance as a surprise, Beccy was encouraging and made me feel completely secure in what I was doing.

I had the photos back tonight, all 67 of them and I adore them, even I can’t stop looking at them thinking.. damn… is this actually me?! 😂

Obviously I’m not going to splash everything I have to offer over the internet but I have been allowed to post one so you get the idea!

I encourage anyone who wants to do a shoot like this to just go for it, it’s such fun to do and the photos are amazing! Thanks so much to the team at Bcaptured in Leek! 📸

2018! The year to really focus on this list!

So here it is, 2018. This year I turn 27 in July, according to medicine, this should be my last year. (Don’t worry, I’ll make sure it isn’t!) People born in 1991 with Cystic Fibrosis had an average life expectancy of 27. How mad is that?! I have alot of adventures planned already this year, hoping to tick a large part of this list off and who knows, I may even add to the list! 

If anyone has any ideas of how I can tick off anything on the list, as always, send me a message to let me know. 

This year is no where near my last, I haven’t even got time to even think that way, I’m too busy enjoying life and focusing on my health for my BIG plans! 

I just wanted to say a quick thanks to my family and partner. You are all amazing, I wouldn’t be half the woman I am today without you all and your support gets me through the tough times more than you know. 

So Happy New Year! I hope everyone has a healthy and happy 2018! 🎉

Update..

So it’s nearly the end of 2017. The last month or so has been a tough one (health wise) and looking at my bucket list, I’m more eager than ever to try and tick some things off while I can! So I’m calling on the power of social media, whilst I’m busy saving and kicking some C.F. ass, if anyone can help or knows of anyone that can help me to get closer to ticking off an activity please email me and let me know 🙂 

Email: jodie_dean14@live.co.uk 

Ticked off so far…

So as you will notice I already have a few things ticked off my list, so I thought I’d share these experiences with you so you can have a nosey and who knows, you may be inspired to do them too!

7. Go skydiving…

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Back in July 2011 I decided to jump out of a plan for charity, I have to say its hands down one of the most amazing feeling’s to know I have done this. My good friend Joanne Hughes organised the day in aid of Breath for life. This is a charity that was initially set up by Joanne and others to help all Stoke CF patients to get a dedicated CF ward in the Royal Stoke hospital. We raised a huge amount that day and although we were not able to get the ward we wanted, it helped a lot towards having dedicated CF rooms and it also helped to make the ward a little nicer for patients.

Obviously, skydiving comes with risks, the biggest one for me is having the lungs to support the free fall, I had no doubt I would be fine but still had to be signed off by my consultant, luckily for me, they were very supportive.

It’s hard to explain the feeling of sitting on the edge of that plane with a stranger attached to my back, all I can remember is pure excitement, not one bit of me was nervous. It was amazing, pure adrenaline, I would say to anyone who is considering it, just do it, you won’t regret it.

8. Swim with dolphins…

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Who wouldn’t have this on their bucket list?! Every child dreams of doing this one day surely? Growing up I always thought I would never be able to go somewhere ‘exotic’ and fulfill this dream, luckily for me, I and my better half went to Mexico this April 2017. I have to say, I underestimated how good it would be, the whole experience felt very surreal and I couldn’t believe I was actually in the water surrounded by these beautiful creatures, they were so clever, so interactive and a lot of fun. You are never too old to do this!

12. Swim with sea turtles…

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In Mexico, we couldn’t help but buy some snorkels and explore, the experience of swimming in between thousands of bright colorful fish is amazing, we booked a day trip on a catamaran and never did I think we would be snorkeling up close and personal with these giant sea turtles! We were told about a family of sea turtles in a certain area of the sea, never do you think you will actually see them never mind swim beside them! We captured this image on our Go Pro, another unforgettable experience and another tick on my list!

32. Jump into an underground cenote…

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This is the freezing cold, fresh water cenote I jumped into, again in Mexico. (Mexico helped my bucket list a lot!) To get to the bottom of this cenote there were about 100 steps, hearing this put me off, I could get down the steps fine, but climbing back up would be a different matter! I was gutted because I knew I would never get the opportunity again, so off Liam went on his own, feeling down because we wanted to experience this together, then I had a thought, you know what, even if it takes me 2 hours climb back up these steps, I have to do this. So down I went to join Liam and instead of jumping getting in like most, I decided what the hell and climbed up to jump off a rock into it! Again, an unforgettable experience, mainly because I’m sure I knew how Rose and Jack on the Titanic felt! Unreal experience, I recommend it highly!

So that’s it, your all up to date with where I am on the list… who knows where my next adventure will be!

My Bucket List

So here it is, my ever- growing bucket list, I started this many years ago as a teenager and been lucky enough to tick some off already. I should probably explain why my bucket list is so important to me… I have Cystic Fibrosis, for those who have not heard of this generic illness, it’s a life-limiting, life-shortening disease that gets worse the older I become.

I have lost many friends who have the same illness as me, all of them between 20- 31 years old, their life ending before it barely began. I want to be able to say ‘I did this’ instead of, ‘I wished I had done that’.

Anyway, this blog is not just about my CF, it’s about making every day count and pushing myself to chase my dreams, so here’s the list, in no particular order, I hope you enjoy reading about me ticking each one off!

  1. Go to a music festival
  2. Visit the USA
  3. Learn a new language
  4. Go ice skating in Central Park NYC
  5. Go skydiving check_mark_u2713_icon_256x256
  6. Swim with dolphins check_mark_u2713_icon_256x256
  7. Learn to salsa dance
  8. Walk with elephants check_mark_u2713_icon_256x256
  9. Be on a TV show
  10. Swim with sea turtles check_mark_u2713_icon_256x256
  11. Do a boudoir photo shootcheck_mark_u2713_icon_256x256
  12. Meet someone famous
  13. Be in a newspaper/ magazine
  14. Visit Ireland for St. Patricks Day
  15. Climb the stairs in the Eiffel tower
  16. Learn to play poker
  17. Ride a horse
  18. Learn to ride a motorbike
  19. Visit a Xmas market in Europe
  20. Attend a masquerade ball
  21. Write a short story
  22. Learn a magic trick
  23. Get hypnotised
  24. Attend a big Halloween party
  25. Do a Xmas box for the homeless
  26. Go to the circus check_mark_u2713_icon_256x256
  27. Travel first class
  28. Go on a safari
  29. Make a significant change in a strangers life
  30. Jump into an underground cenote check_mark_u2713_icon_256x256
  31. Go to see a famous comedian in stand up
  32. Book a spontaneous blind holiday